Welcome to the ZOZONE!

My name is Fiona, I am a Mom to 2 fabulous little girls Lara and Zoë.

Zoë has special needs and is “complex” in terms of her diagnosis. At present the diagnoses we have for Zoë are- genetic epileptic encephalopathy, West Syndrome/Infantile Spasm, Global Developmental Delay, hyperopia and Autism. The consensus amongst her specialists is that she has a rare genetic disorder, and we are currently undergoing testing to determine what this condition is.

I decided to start this blog for a few reasons, mainly to keep family and friends up to date with what is going on with Zoë, and to keep a track of it myself. I also think  that it could be very useful once we have an actual named genetic disorder, maybe we can connect with other families who have children with the same condition as Zoë.

Every thing is a challenge for Zoë, and we are her cheer team. Would you like to be part of her support network? If so sign up to the mailing list for updates.

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